So 19 months off Protopic. I am happy to report that last flare only lasted maybe 3 weeks. It never got too bad. Below are some pictures from today.
Neck is still a little pink but the rash and itch are gone again.
Arms have a couple little spots that I have been scratching a bit but they are better too.
Palms, as you can see they are doing really well, but still a couple little tiny spots that are itchy. That circled area is where I am still getting a bit of the tiny blisters so it gets a bit itchy sometimes.
Overall though things are still chugging along. Legs are still the same. I am not sure why they take so long to heal.
I have now gone three days without needing my sleeping pill to sleep! Yipee. I have been slowly weaning off since December. It feels great to not need it. I started taking it about one month into my withdrawal and have not gone a night without it since so this feels amazing!
I have been trying to get sun. I sat outside a couple weeks ago when it was about +12 celcius for about 30 minutes and I got sun burned! That was not a fun night haha but it felt great to be in the sun and I really feel like it helped me out in the long run. It got snowy and cold again after that so I could not get outside much, but last week started to warm up again. +16 on Friday so I sat outside for 15 minutes and it felt so good. I am going to keep trying to get in the sun as much as possible.
I was worried that I was out of the blue getting eczema on the bottoms of my feet, which I have not had any of my entire withdrawal, but I am happy to say I think I was wrong. I am pretty sure my feet were really itchy one day because it had snowed and I stupidly wore holy shoes, and so my feet were wet for quite a while. Not my brightest moment. So my feet have been good since.
Well, not much else to report right now. I hope you are all doing well.
Well I guess it was too good to be true? Lol I am flaring a bit. And I mean a bit. I hate to even post this cause really it is nothing compared to what I have experienced in the past but I want to keep everyone updated on what’s going on.
I kept hoping it would go away but it has been a week or so now. It is only my chest, lower arms, and a teensy bit my hands.
My hands are barley flaring. Only a couple tiny blisters, compared to the fact that I had none the last few months, but no cracks or anything.
Below are pictures of my neck and arm.
No ooze, very little pain on my chest. I can still turn my head good. It was burning a teensy bit this morning on my drive to work but it was very mild. I think some nerve pain, but again very mild, almost not noticeable. It is only a bit itchy at night, but I scratch for maybe 10 minutes and it is not the deep itch from before. I think I scratch it through the night while I am sleeping more though. It is hard to control that. Pretty sure it is because I get too hot.
Other than that though I feel great. Still sleeping great, a ton of energy. My skin still holds moisture completely fine. Plus I am also getting pimples. lol
I really hope it does not get worse. I am trying not to stress about it and just trust God. 🙂
Technically I will not be 18 months until the 29th, but there is no February 29. Lol So I am updating today.
This is just a quick note to say that I am doing amazing. My last post I said I was worried that I was starting to flare because my eyes were goopy again, but that cleared up quickly after I got better from being sick with a cold. No issues since! 🙂 My eyes are back to normal. I really do not have much to say. Everything is still pretty much the same everywhere else. My legs continue to slooooowly heal. I hope I can wear shorts this summer!
One thing I have also noticed in the last couple months is how much energy I have again. I knew my energy was lacking during my first year or so of TSW but now that I am feeling great I really realize it. The first year of TSW, I never wanted to cook or clean or do anything. Basically I just wanted to sit on my couch and that was it. Now I am cooking again and I have a ton of energy to get my house cleaned. I can go go go. It feels great. I just feel normal despite having a few lingering issues, and I am hopeful that those will clear in time. 🙂
I have been doing pretty good since my last post. My skin continues to heal and strengthen. I put cream on in the morning after my shower and do not need to put any on throughout the day. Absolutely none! Feels great.
My legs are still a bit scabby, I think they will take a while more to heal.
Overall my neck, which was the worst throughout this whole process is doing really well, except I have this one spot that keeps popping up. However it feels more like normal eczema. It is not itchy all the time. Most of the time I can ignore it. It never spreads and after a few days it flakes off and goes back to my normal skin color. Much more tolerable than this whole TSW business and not really an issue. I can handle it easy peasy.
However, the past week I have been sick with a cold and Sunday morning I woke up with my eyes being crusty. They haven’t been like that in months! Probably not since the fall after coming out of my last flare. Now throughout the day my eyes have been leaky again with that goopy stuff, which not to be gross, but it is the same yellow color as my snot. LOL I say this because I am not sure if it is just because I am sick, or maybe another flare is coming. I say that, because my anniversary flare last year started in my eyes the same way and then went downhill from there. So I am worried.
I am trying not to dwell on it, and praying that it will not get worse. If it does I know I will heal again, but I just really do not want to go through that again. Think positive. Think positive!
Things have been going really well for months 15 and now 16. My skin continues to heal. My skin can hold moisture. I apply moisturizer in the morning and then can get through all day without need to apply anymore. I hardly have any flaky skin. So no need to vacuum my bed out anymore. No oozing in the last two months. My legs are probably the worst, still scabby but way less than they were. They are healing slowly. I was getting hives on my arms in the mornings but even that in the last week or two has seemed to have gotten better. I sleep great. I have hardly any itching. Nothing like the hour long sessions I used to have. I do still scratch when I get too warm or sweaty, but my skin is strong. My skin is not red anymore. My neck is still a bit splotchy, which you can see below, but nothing like before. To those that do not know what I have been through I look normal! The skin still feels a little tight at night when turning my neck, but I can still do it easily, and I believe that will continue to heal. The splits on my hands have closed up. They do still get some bump or hives, I think its food related, but they are waaaaaay better than they were.
My arms still has some bumps, but this picture looks worse than my skin does in person.
I am doing really well right now. I am just trying to live my normal life and enjoy it. I do always have in the back of my mind a worry about flaring up again. I worry what the summer will bring next year, but I have to try not to worry. I hope you take out of this that we all will heal. Be positive and keep your faith. Don’t give in no matter how hard it gets. If you have any questions, please ask. All the best for you all in 2015!
Not a whole lot of changes to report this month. Everything has been pretty much status quo. The flaking is very minimal. Last week my neck was feeling rough for a few days and then one morning I woke up to it being a bit flaky. I rubbed it off in the shower and it has been smooth since. Still dry, but barely flaky. Itching is minimal as well. I have maybe three or four episodes a day, but they are very short lasting, and I sometimes wonder if it just starts out of me habitually scratching my neck (still my itchiest spot). I will have to try to keep a closer eye on it. I used to scratch sooo much before bed, but now I go quite a few nights a week with barely any scratching in bed. It is sooo nice. I am still a bit red. It varies day to day, but I do think it is getting better. More pinky in color rather than bright red. My legs are still scabby. They seem to take forever to heal, but could be cause I have trouble not picking it. UGH. Bad habits I tell ya. Sleep has been decent. My hair has been falling out again a bit. I am not too worried about it yet, but hopefully it won’t last long.
One positive to report is that just this morning actually, I noticed on my right hand, that the skin splits, which had been open, split, and oozy for MONTHS, are closed up!!!!! The last two days I have been doing a strict no dairy diet, so I wonder if it is related to that? My last allergy test did show I was allergic to dairy and I have been eating basically whatever I wanted to for months, so I guess we will see. J It could just be a fluke though. So hard to tell.
It has been cooling down here now and the air is getting drier. I hope it won’t affect my skin too much.
Hope you are all doing okay. On to month 15!
Well I can happily say that darn flare is OVER! YAH! My body is sloooowly healing now. Thankfully no more spreading or worsening symptoms though. Oh that was a horrible few months.
I have noticed that my neck and chest are finally flaking less. Still some but WAY less than it was. I just get a fine layer of flaky skin there overnight now. Compared to how it was the past year, a thick covering of dead skin, this is way better! And touch wood no oozing on my neck in a couple weeks. Of course every time I say I haven’t had oozing I end up having some lol so hopefully I won’t. My itching on my neck is also significantly decreased. I used to be sooo itchy every night before bed. Now I can usually go to bed with no or very minimal itching. I do sometimes wake up scratching my neck and chest though. Not sure if it is just I am too hot or what, but it is still not as bad as it was. My face and neck are still red, but I think it is calming down.
My eyes are less puffy, and leaking much less than they were. I don’t have to pry my eyes open in the morning. Still have a rash on my thighs and tummy but its not bad. My arms are healing. No more cuts on the crooks of my arms so I can stretch them again! No more walking like a T-rex. But they are still dry and flaky. Still have the red sleeve, but it think it is a bit lighter. My legs are healing as well. Much less scratch marks. Still red though. My feet are still itchy and a bit scabby.
Overall the dryness has improved. Although I am still dry, it is not as bad as it was. No more chills either!
So no dramatic healing yet, but I am doing much better than I was a month ago. I will take the slow healing any day over the flaring.
Keep going guys! We can do this!