2 Years! Wow. When you are in the beginning stages, you feel like this marker is so far away. Its finally and here and so worth all those tears and pain. I am doing so much better than those early stages. I hope I will never take for granted having nice skin again.
So how are things today? Well I have some slight skin issues, just a bit of normal eczema on my palms, neck/chest, inside of my lower arms, thighs, and lower legs. These spots are a bit eczematous but it hardly bothers me. I don’t really think much about it. I am still seeing a homoeopathic doctor and he believes that these spots are due to hormones. I am due to get my period this week, so we will see if these spots clear up in the next week or two.
I even started going to the gym again and working out with a personal trainer and can sweat like crazy with hardly any problems.
I sleep great. My itching is about a 1-2 out of 10 depending on the day. Even when I do scratch, it is a normal scratch. It is itchy, I scratch it, and then that’s it. I no longer have the hour long scratching sessions. No flaking, no oozing, no pain. My life is 100% back to normal. It feels great! I thank the Lord everyday for bringing me so far and healing me so much. It is truly a blessing from Him.
Do I think my TSW is over? I am not sure. You really never know with this beast. So for now I think I will just say lets wait and see how things play out over the next few months. But for those in the early stages take heart, you will not always be suffering.
If you have any questions, please ask. 🙂 Take care.
Just a quick update, I am 23 months TSW, Protopic withdrawal.
My last flare lasted only a week or two. I went on vacation for three weeks and had an amazing time with hardly any skin troubles. In fact, I have a beautiful tan! My first tan in quite a few year! Currently I am really having no skin issues. My legs have finally almost healed with just a few tiny spots, but unfortunately I now have to wait for the scars to fade. Oh well, I wont complain about that.
See you next month!
Okay, so 22 months. Well I am flaring up again a bit. It started a couple weeks ago. I noticed I was getting some occasional hives, which I haven’t had in a long time. I also had a couple of sleepless nights, but thankfully I have been sleeping great in the last week. In fact I have been rather tired the last week. Last weekend I noticed my neck staring to get the small flares on the sides of it again, which had been clear for a while. Then I started to get some eczema on the backs of my hands last week, just a few small spots, which today are almost gone already. My palms started flaring up again. No cracks, but some of the little blisters. My left inner arm started flaring a bit last week too. It’s a bit rashy and a bit itchy. Nothing too bad. The picture below makes it look better than it is.
My neck was red and angry looking yesterday. You can see the picture below. I only seem to scratch it through the night while I am sleeping, but it has been VERY hot here. It was 32 Celsius yesterday. I put some zinc on it last night and it’s a bit less red today, which you can see in the second picture (with the purple shirt on).
Oddly I have still been getting pimples and my forehead is a bit oily. My face has been relatively unaffected so far, except my eyes which have been dryer and a bit more leaky than normal.
Legs are still their same scabby selves. Nothing has changed there.
I leave on Saturday to go on a three week vacation in another province. It will be my first vacation since I started TSW. I have been planning this since January. I was doing so well, I am bummed that I am flaring, although I do realize that it’s not too bad. I just worry about if it will get worse. I will be staying with family who don’t even know I have gone through TSW, and I don’t want to have to answer questions about my skin.
I am just going to trust God, that He is in control, and pray it won’t get worse and this flare will be short lived.
So 19 months off Protopic. I am happy to report that last flare only lasted maybe 3 weeks. It never got too bad. Below are some pictures from today.
Neck is still a little pink but the rash and itch are gone again.
Arms have a couple little spots that I have been scratching a bit but they are better too.
Palms, as you can see they are doing really well, but still a couple little tiny spots that are itchy. That circled area is where I am still getting a bit of the tiny blisters so it gets a bit itchy sometimes.
Overall though things are still chugging along. Legs are still the same. I am not sure why they take so long to heal.
I have now gone three days without needing my sleeping pill to sleep! Yipee. I have been slowly weaning off since December. It feels great to not need it. I started taking it about one month into my withdrawal and have not gone a night without it since so this feels amazing!
I have been trying to get sun. I sat outside a couple weeks ago when it was about +12 celcius for about 30 minutes and I got sun burned! That was not a fun night haha but it felt great to be in the sun and I really feel like it helped me out in the long run. It got snowy and cold again after that so I could not get outside much, but last week started to warm up again. +16 on Friday so I sat outside for 15 minutes and it felt so good. I am going to keep trying to get in the sun as much as possible.
I was worried that I was out of the blue getting eczema on the bottoms of my feet, which I have not had any of my entire withdrawal, but I am happy to say I think I was wrong. I am pretty sure my feet were really itchy one day because it had snowed and I stupidly wore holy shoes, and so my feet were wet for quite a while. Not my brightest moment. So my feet have been good since.
Well, not much else to report right now. I hope you are all doing well.
Things have been going really well for months 15 and now 16. My skin continues to heal. My skin can hold moisture. I apply moisturizer in the morning and then can get through all day without need to apply anymore. I hardly have any flaky skin. So no need to vacuum my bed out anymore. No oozing in the last two months. My legs are probably the worst, still scabby but way less than they were. They are healing slowly. I was getting hives on my arms in the mornings but even that in the last week or two has seemed to have gotten better. I sleep great. I have hardly any itching. Nothing like the hour long sessions I used to have. I do still scratch when I get too warm or sweaty, but my skin is strong. My skin is not red anymore. My neck is still a bit splotchy, which you can see below, but nothing like before. To those that do not know what I have been through I look normal! The skin still feels a little tight at night when turning my neck, but I can still do it easily, and I believe that will continue to heal. The splits on my hands have closed up. They do still get some bump or hives, I think its food related, but they are waaaaaay better than they were.
My arms still has some bumps, but this picture looks worse than my skin does in person.
I am doing really well right now. I am just trying to live my normal life and enjoy it. I do always have in the back of my mind a worry about flaring up again. I worry what the summer will bring next year, but I have to try not to worry. I hope you take out of this that we all will heal. Be positive and keep your faith. Don’t give in no matter how hard it gets. If you have any questions, please ask. All the best for you all in 2015!
I am just a few days into my 10th month and I think I must be flaring again. It has been this way for about a week or two now, but I was not really sure what was going on since it nothing near as bad as my first flare, but definitely worse than I had been. The symptoms are very manageable, but here they are…
-Constant leaky watery eyes
-Occasionally puffier eyes
-Dyer skin on my face
-Trouble sleeping again
-Hands have more blisters on them
-Neck is more flaky and oozes a bit when scratched too much. Having to vacuum the bed again each morning only because my neck is flaking so much each night. No other body part is really flaking that much.
-Neck is more sore at night, so back to taking Ibuprofen to help with the pain. (I didn’t need to take it for a few months)
Yesterday was HOT. After work I thought I would treat myself and my boyfriend and get us some ice cream from Dairy Queen. So I got us some blizzards. Ate it around 9:45 pm and by 10:15 I was starting to get itchy. I tore open the skin on my left arm crook a bit and then scratched my neck like crazy. It was that awful feeling that I could not stop scratching. I gobbled down some Benadryl and hopped in the shower. That helped ease the scratching and I felt better when I got out, but it soon started up again. I had trouble sleeping, as I have been for the last few weeks.
I initially thought my scratch fest last night was maybe an allergic reaction to the ice cream. I have been lactose intolerant in the past. But it could also be just part of this flare. Who knows…
Anyway’s that’s about it. This flare is not too bad. I suppose it could be called a mini flare? But it’s definitely annoying. Its been going on a week or two now, so hopefully it will clear up soon. Maybe this is my year flare? From what I have read people get them anywhere from 10-13 months. Ha! Hopeful wishing right. 😉
I just wanted to add a bit of happy news. I popped back to ITSAN yesterday and lo and behold a member who is also withdrawing mainly from Protopic had added an update. She was the one who made realize I was really going through withdrawal from the Protopic. Anyhow, she is now 2 years along and says she is about 90-95% healed! How wonderful! That definitely gave me a lift! I cannot wait to be there!
Hope you all are doing okay! Keep telling yourselves we will heal!
If you have uncontrollable or worsening eczema, please check out this video. You could have steroid induced eczema, and thankfully there is a cure!
Please check out http://www.itsan.org/ for more information.