2 Years! Wow. When you are in the beginning stages, you feel like this marker is so far away. Its finally and here and so worth all those tears and pain. I am doing so much better than those early stages. I hope I will never take for granted having nice skin again.
So how are things today? Well I have some slight skin issues, just a bit of normal eczema on my palms, neck/chest, inside of my lower arms, thighs, and lower legs. These spots are a bit eczematous but it hardly bothers me. I don’t really think much about it. I am still seeing a homoeopathic doctor and he believes that these spots are due to hormones. I am due to get my period this week, so we will see if these spots clear up in the next week or two.
I even started going to the gym again and working out with a personal trainer and can sweat like crazy with hardly any problems.
I sleep great. My itching is about a 1-2 out of 10 depending on the day. Even when I do scratch, it is a normal scratch. It is itchy, I scratch it, and then that’s it. I no longer have the hour long scratching sessions. No flaking, no oozing, no pain. My life is 100% back to normal. It feels great! I thank the Lord everyday for bringing me so far and healing me so much. It is truly a blessing from Him.
Do I think my TSW is over? I am not sure. You really never know with this beast. So for now I think I will just say lets wait and see how things play out over the next few months. But for those in the early stages take heart, you will not always be suffering.
If you have any questions, please ask. 🙂 Take care.
Just a quick update, I am 23 months TSW, Protopic withdrawal.
My last flare lasted only a week or two. I went on vacation for three weeks and had an amazing time with hardly any skin troubles. In fact, I have a beautiful tan! My first tan in quite a few year! Currently I am really having no skin issues. My legs have finally almost healed with just a few tiny spots, but unfortunately I now have to wait for the scars to fade. Oh well, I wont complain about that.
See you next month!
Okay, so 22 months. Well I am flaring up again a bit. It started a couple weeks ago. I noticed I was getting some occasional hives, which I haven’t had in a long time. I also had a couple of sleepless nights, but thankfully I have been sleeping great in the last week. In fact I have been rather tired the last week. Last weekend I noticed my neck staring to get the small flares on the sides of it again, which had been clear for a while. Then I started to get some eczema on the backs of my hands last week, just a few small spots, which today are almost gone already. My palms started flaring up again. No cracks, but some of the little blisters. My left inner arm started flaring a bit last week too. It’s a bit rashy and a bit itchy. Nothing too bad. The picture below makes it look better than it is.
My neck was red and angry looking yesterday. You can see the picture below. I only seem to scratch it through the night while I am sleeping, but it has been VERY hot here. It was 32 Celsius yesterday. I put some zinc on it last night and it’s a bit less red today, which you can see in the second picture (with the purple shirt on).
Oddly I have still been getting pimples and my forehead is a bit oily. My face has been relatively unaffected so far, except my eyes which have been dryer and a bit more leaky than normal.
Legs are still their same scabby selves. Nothing has changed there.
I leave on Saturday to go on a three week vacation in another province. It will be my first vacation since I started TSW. I have been planning this since January. I was doing so well, I am bummed that I am flaring, although I do realize that it’s not too bad. I just worry about if it will get worse. I will be staying with family who don’t even know I have gone through TSW, and I don’t want to have to answer questions about my skin.
I am just going to trust God, that He is in control, and pray it won’t get worse and this flare will be short lived.
So 19 months off Protopic. I am happy to report that last flare only lasted maybe 3 weeks. It never got too bad. Below are some pictures from today.
Neck is still a little pink but the rash and itch are gone again.
Arms have a couple little spots that I have been scratching a bit but they are better too.
Palms, as you can see they are doing really well, but still a couple little tiny spots that are itchy. That circled area is where I am still getting a bit of the tiny blisters so it gets a bit itchy sometimes.
Overall though things are still chugging along. Legs are still the same. I am not sure why they take so long to heal.
I have now gone three days without needing my sleeping pill to sleep! Yipee. I have been slowly weaning off since December. It feels great to not need it. I started taking it about one month into my withdrawal and have not gone a night without it since so this feels amazing!
I have been trying to get sun. I sat outside a couple weeks ago when it was about +12 celcius for about 30 minutes and I got sun burned! That was not a fun night haha but it felt great to be in the sun and I really feel like it helped me out in the long run. It got snowy and cold again after that so I could not get outside much, but last week started to warm up again. +16 on Friday so I sat outside for 15 minutes and it felt so good. I am going to keep trying to get in the sun as much as possible.
I was worried that I was out of the blue getting eczema on the bottoms of my feet, which I have not had any of my entire withdrawal, but I am happy to say I think I was wrong. I am pretty sure my feet were really itchy one day because it had snowed and I stupidly wore holy shoes, and so my feet were wet for quite a while. Not my brightest moment. So my feet have been good since.
Well, not much else to report right now. I hope you are all doing well.
Not a whole lot of changes to report this month. Everything has been pretty much status quo. The flaking is very minimal. Last week my neck was feeling rough for a few days and then one morning I woke up to it being a bit flaky. I rubbed it off in the shower and it has been smooth since. Still dry, but barely flaky. Itching is minimal as well. I have maybe three or four episodes a day, but they are very short lasting, and I sometimes wonder if it just starts out of me habitually scratching my neck (still my itchiest spot). I will have to try to keep a closer eye on it. I used to scratch sooo much before bed, but now I go quite a few nights a week with barely any scratching in bed. It is sooo nice. I am still a bit red. It varies day to day, but I do think it is getting better. More pinky in color rather than bright red. My legs are still scabby. They seem to take forever to heal, but could be cause I have trouble not picking it. UGH. Bad habits I tell ya. Sleep has been decent. My hair has been falling out again a bit. I am not too worried about it yet, but hopefully it won’t last long.
One positive to report is that just this morning actually, I noticed on my right hand, that the skin splits, which had been open, split, and oozy for MONTHS, are closed up!!!!! The last two days I have been doing a strict no dairy diet, so I wonder if it is related to that? My last allergy test did show I was allergic to dairy and I have been eating basically whatever I wanted to for months, so I guess we will see. J It could just be a fluke though. So hard to tell.
It has been cooling down here now and the air is getting drier. I hope it won’t affect my skin too much.
Hope you are all doing okay. On to month 15!
Well I can happily say that darn flare is OVER! YAH! My body is sloooowly healing now. Thankfully no more spreading or worsening symptoms though. Oh that was a horrible few months.
I have noticed that my neck and chest are finally flaking less. Still some but WAY less than it was. I just get a fine layer of flaky skin there overnight now. Compared to how it was the past year, a thick covering of dead skin, this is way better! And touch wood no oozing on my neck in a couple weeks. Of course every time I say I haven’t had oozing I end up having some lol so hopefully I won’t. My itching on my neck is also significantly decreased. I used to be sooo itchy every night before bed. Now I can usually go to bed with no or very minimal itching. I do sometimes wake up scratching my neck and chest though. Not sure if it is just I am too hot or what, but it is still not as bad as it was. My face and neck are still red, but I think it is calming down.
My eyes are less puffy, and leaking much less than they were. I don’t have to pry my eyes open in the morning. Still have a rash on my thighs and tummy but its not bad. My arms are healing. No more cuts on the crooks of my arms so I can stretch them again! No more walking like a T-rex. But they are still dry and flaky. Still have the red sleeve, but it think it is a bit lighter. My legs are healing as well. Much less scratch marks. Still red though. My feet are still itchy and a bit scabby.
Overall the dryness has improved. Although I am still dry, it is not as bad as it was. No more chills either!
So no dramatic healing yet, but I am doing much better than I was a month ago. I will take the slow healing any day over the flaring.
Keep going guys! We can do this!
If you have uncontrollable or worsening eczema, please check out this video. You could have steroid induced eczema, and thankfully there is a cure!
Please check out http://www.itsan.org/ for more information.