22 Months Protopic Withdrawal

Okay, so 22 months. Well I am flaring up again a bit. It started a couple weeks ago. I noticed I was getting some occasional hives, which I haven’t had in a long time. I also had a couple of sleepless nights, but thankfully I have been sleeping great in the last week. In fact I have been rather tired the last week. Last weekend I noticed my neck staring to get the small flares on the sides of it again, which had been clear for a while. Then I started to get some eczema on the backs of my hands last week, just a few small spots, which today are almost gone already. My palms started flaring up again. No cracks, but some of the little blisters. My left inner arm started flaring a bit last week too. It’s a bit rashy and a bit itchy. Nothing too bad. The picture below makes it look better than it is.

arm

My neck was red and angry looking yesterday. You can see the picture below. I only seem to scratch it through the night while I am sleeping, but it has been VERY hot here. It was 32 Celsius yesterday. I put some zinc on it last night and it’s a bit less red today, which you can see in the second picture (with the purple shirt on).

neck 1  neck 2

Oddly I have still been getting pimples and my forehead is a bit oily. My face has been relatively unaffected so far, except my eyes which have been dryer and a bit more leaky than normal.

Legs are still their same scabby selves. Nothing has changed there.

I leave on Saturday to go on a three week vacation in another province. It will be my first vacation since I started TSW. I have been planning this since January. I was doing so well, I am bummed that I am flaring, although I do realize that it’s not too bad. I just worry about if it will get worse. I will be staying with family who don’t even know I have gone through TSW, and I don’t want to have to answer questions about my skin.

I am just going to trust God, that He is in control, and pray it won’t get worse and this flare will be short lived.

14 Months Off Protopic

Not a whole lot of changes to report this month. Everything has been pretty much status quo. The flaking is very minimal. Last week my neck was feeling rough for a few days and then one morning I woke up to it being a bit flaky. I rubbed it off in the shower and it has been smooth since. Still dry, but barely flaky. Itching is minimal as well. I have maybe three or four episodes a day, but they are very short lasting, and I sometimes wonder if it just starts out of me habitually scratching my neck (still my itchiest spot). I will have to try to keep a closer eye on it. I used to scratch sooo much before bed, but now I go quite a few nights a week with barely any scratching in bed. It is sooo nice. I am still a bit red. It varies day to day, but I do think it is getting better. More pinky in color rather than bright red. My legs are still scabby. They seem to take forever to heal, but could be cause I have trouble not picking it. UGH. Bad habits I tell ya. Sleep has been decent. My hair has been falling out again a bit. I am not too worried about it yet, but hopefully it won’t last long.

One positive to report is that just this morning actually, I noticed on my right hand, that the skin splits, which had been open, split, and oozy for MONTHS, are closed up!!!!! The last two days I have been doing a strict no dairy diet, so I wonder if it is related to that? My last allergy test did show I was allergic to dairy and I have been eating basically whatever I wanted to for months, so I guess we will see. J It could just be a fluke though. So hard to tell.

It has been cooling down here now and the air is getting drier. I hope it won’t affect my skin too much.

Hope you are all doing okay. On to month 15!

10 weeks – 76 days off Protopic

Well I am into my third month. I will start with the positive; the swelling finally went down in my legs and ankles! Yay! My legs now have started to ooze very easily in some spots though. They are also still red but the redness does seem to be broken up with some normal looking colour skin. And there is lots of flaking going on in the spots where it is oozing. The skin also feels softer. So hopefully this is all signs of healing! The negative, if you can call it that, is that nothing else much has changed. My skin still cycles through being very flaky to just being very dry. I had a few days off from work because of my birthday and woke up last Friday thinking I was getting worse because I was sooo flaky. It was crazy how much I had to scrub off in the shower. But by Saturday I was much less flaky, just very dry. My neck is still my worst spot. By the end of the day I am in significant pain because of it and can barley turn my head. It does still ooze a bit if I scratch too much but it does seem like the skin is getting stronger. My hands seems like they are healing. There is less blisters and it is very flaky. I am trying to just keep a glove on my worst hand, as it seems to help keep it from splitting open. I still have all my other symptoms. I am cold and tired. A couple weeks and I will be into the triple digits of Protopic withdrawal. I am hoping I will start to see some significant healing soon. It was rather depressing waking up on my 28th birthday feeling this way. Next year’s birthday will be better though. I just have to keep toughing it out. I am just weary of this trial. I am tired of having to take two showers a day and constantly applying moisturiser. I am tired of being so flaky and dry. I am tired of being in pain. I am tired of not sleeping. I just need strength Lord to keep going. I don’t have any other options anyways. I can’t go back to TS or Protopic. So I just have to keeping going down this path.

 

Now, if you are reading this and have eczema that seems to just be getting worse even while using topical steroids, please check out this website. http://www.itsan.org/ Your “eczema” could just be steroid induced and can be CURED, yes CURED! This is the road that I am on. I also find lots of comfort from the Forum. It is nice to know there are other people out there feeling exactly the same way.