2 Years! Wow. When you are in the beginning stages, you feel like this marker is so far away. Its finally and here and so worth all those tears and pain. I am doing so much better than those early stages. I hope I will never take for granted having nice skin again.
So how are things today? Well I have some slight skin issues, just a bit of normal eczema on my palms, neck/chest, inside of my lower arms, thighs, and lower legs. These spots are a bit eczematous but it hardly bothers me. I don’t really think much about it. I am still seeing a homoeopathic doctor and he believes that these spots are due to hormones. I am due to get my period this week, so we will see if these spots clear up in the next week or two.
I even started going to the gym again and working out with a personal trainer and can sweat like crazy with hardly any problems.
I sleep great. My itching is about a 1-2 out of 10 depending on the day. Even when I do scratch, it is a normal scratch. It is itchy, I scratch it, and then that’s it. I no longer have the hour long scratching sessions. No flaking, no oozing, no pain. My life is 100% back to normal. It feels great! I thank the Lord everyday for bringing me so far and healing me so much. It is truly a blessing from Him.
Do I think my TSW is over? I am not sure. You really never know with this beast. So for now I think I will just say lets wait and see how things play out over the next few months. But for those in the early stages take heart, you will not always be suffering.
If you have any questions, please ask. 🙂 Take care.
Just a quick update, I am 23 months TSW, Protopic withdrawal.
My last flare lasted only a week or two. I went on vacation for three weeks and had an amazing time with hardly any skin troubles. In fact, I have a beautiful tan! My first tan in quite a few year! Currently I am really having no skin issues. My legs have finally almost healed with just a few tiny spots, but unfortunately I now have to wait for the scars to fade. Oh well, I wont complain about that.
See you next month!
Okay, so 22 months. Well I am flaring up again a bit. It started a couple weeks ago. I noticed I was getting some occasional hives, which I haven’t had in a long time. I also had a couple of sleepless nights, but thankfully I have been sleeping great in the last week. In fact I have been rather tired the last week. Last weekend I noticed my neck staring to get the small flares on the sides of it again, which had been clear for a while. Then I started to get some eczema on the backs of my hands last week, just a few small spots, which today are almost gone already. My palms started flaring up again. No cracks, but some of the little blisters. My left inner arm started flaring a bit last week too. It’s a bit rashy and a bit itchy. Nothing too bad. The picture below makes it look better than it is.
My neck was red and angry looking yesterday. You can see the picture below. I only seem to scratch it through the night while I am sleeping, but it has been VERY hot here. It was 32 Celsius yesterday. I put some zinc on it last night and it’s a bit less red today, which you can see in the second picture (with the purple shirt on).
Oddly I have still been getting pimples and my forehead is a bit oily. My face has been relatively unaffected so far, except my eyes which have been dryer and a bit more leaky than normal.
Legs are still their same scabby selves. Nothing has changed there.
I leave on Saturday to go on a three week vacation in another province. It will be my first vacation since I started TSW. I have been planning this since January. I was doing so well, I am bummed that I am flaring, although I do realize that it’s not too bad. I just worry about if it will get worse. I will be staying with family who don’t even know I have gone through TSW, and I don’t want to have to answer questions about my skin.
I am just going to trust God, that He is in control, and pray it won’t get worse and this flare will be short lived.
Technically I will not be 18 months until the 29th, but there is no February 29. Lol So I am updating today.
This is just a quick note to say that I am doing amazing. My last post I said I was worried that I was starting to flare because my eyes were goopy again, but that cleared up quickly after I got better from being sick with a cold. No issues since! 🙂 My eyes are back to normal. I really do not have much to say. Everything is still pretty much the same everywhere else. My legs continue to slooooowly heal. I hope I can wear shorts this summer!
One thing I have also noticed in the last couple months is how much energy I have again. I knew my energy was lacking during my first year or so of TSW but now that I am feeling great I really realize it. The first year of TSW, I never wanted to cook or clean or do anything. Basically I just wanted to sit on my couch and that was it. Now I am cooking again and I have a ton of energy to get my house cleaned. I can go go go. It feels great. I just feel normal despite having a few lingering issues, and I am hopeful that those will clear in time. 🙂
Things have been going really well for months 15 and now 16. My skin continues to heal. My skin can hold moisture. I apply moisturizer in the morning and then can get through all day without need to apply anymore. I hardly have any flaky skin. So no need to vacuum my bed out anymore. No oozing in the last two months. My legs are probably the worst, still scabby but way less than they were. They are healing slowly. I was getting hives on my arms in the mornings but even that in the last week or two has seemed to have gotten better. I sleep great. I have hardly any itching. Nothing like the hour long sessions I used to have. I do still scratch when I get too warm or sweaty, but my skin is strong. My skin is not red anymore. My neck is still a bit splotchy, which you can see below, but nothing like before. To those that do not know what I have been through I look normal! The skin still feels a little tight at night when turning my neck, but I can still do it easily, and I believe that will continue to heal. The splits on my hands have closed up. They do still get some bump or hives, I think its food related, but they are waaaaaay better than they were.
My arms still has some bumps, but this picture looks worse than my skin does in person.
I am doing really well right now. I am just trying to live my normal life and enjoy it. I do always have in the back of my mind a worry about flaring up again. I worry what the summer will bring next year, but I have to try not to worry. I hope you take out of this that we all will heal. Be positive and keep your faith. Don’t give in no matter how hard it gets. If you have any questions, please ask. All the best for you all in 2015!
If you have uncontrollable or worsening eczema, please check out this video. You could have steroid induced eczema, and thankfully there is a cure!
Please check out http://www.itsan.org/ for more information.