22 Months Protopic Withdrawal

Okay, so 22 months. Well I am flaring up again a bit. It started a couple weeks ago. I noticed I was getting some occasional hives, which I haven’t had in a long time. I also had a couple of sleepless nights, but thankfully I have been sleeping great in the last week. In fact I have been rather tired the last week. Last weekend I noticed my neck staring to get the small flares on the sides of it again, which had been clear for a while. Then I started to get some eczema on the backs of my hands last week, just a few small spots, which today are almost gone already. My palms started flaring up again. No cracks, but some of the little blisters. My left inner arm started flaring a bit last week too. It’s a bit rashy and a bit itchy. Nothing too bad. The picture below makes it look better than it is.

arm

My neck was red and angry looking yesterday. You can see the picture below. I only seem to scratch it through the night while I am sleeping, but it has been VERY hot here. It was 32 Celsius yesterday. I put some zinc on it last night and it’s a bit less red today, which you can see in the second picture (with the purple shirt on).

neck 1  neck 2

Oddly I have still been getting pimples and my forehead is a bit oily. My face has been relatively unaffected so far, except my eyes which have been dryer and a bit more leaky than normal.

Legs are still their same scabby selves. Nothing has changed there.

I leave on Saturday to go on a three week vacation in another province. It will be my first vacation since I started TSW. I have been planning this since January. I was doing so well, I am bummed that I am flaring, although I do realize that it’s not too bad. I just worry about if it will get worse. I will be staying with family who don’t even know I have gone through TSW, and I don’t want to have to answer questions about my skin.

I am just going to trust God, that He is in control, and pray it won’t get worse and this flare will be short lived.

Stagnant

180 days into my withdrawal from Protopic. Almost into my 7th month. I have not been posting much lately because things are just pretty stagnant. My last flare lasted a week or two. It was nothing too bad, just annoying really. Since then my skin just goes up and down. I am still dry and itchy, a little bit flaky. My neck still hurts a bit at night. I get hives. My hair is still falling out. My face must be a bit red again because I got asked the other day if I had been in the sun. Nope, it’s -25 here today! No sun for me. Hopefully it will start warming up soon. I feel like I need to get sun for my skin to keep healing. I need to get back to the gym to, but im just so tired all the time. I have no energy so it is hard to convince myself to go to the gym.  I think right now my worst spots are the insides of my lower legs, my ankles, my hands, the insides of my arms, and my neck and chest. So basically the same spots for the last couple months. Everywhere else is pretty eczema free, just a bit dry.

I hope I start seeing more healing soon. I start to wonder if my skin will always be this way, but I know it wont. I just have to be patient. This is a long journey I am on. I cant wait to feel normal again.

115 Days Protopic Withdrawal

I think I just went through a mini flare. The backs of my legs, arms, tummy, and thighs, all of which were previously pretty smooth became red and dry and then yesterday were very flaky, and my arms had many scratches on them. It could be because its very cold here right now, possibly also because I am feeling very tired and run down. I had to work 8 am to 11 pm between my two jobs the other day and I am exhausted. Christmas time means we have longer hours at my second job. On top of that I am still not sleeping very good. However today I woke up and those spots were much smoother. I was able to remove the flakes in the shower and now those spots are soft. So the flare up only lasted a few days. Thankfully during Christmas and New Years I will have about 10 days off from my full time day job so I will be able to get rested up. I find my body does lots of healing while I am not working.

I am losing a ton of hair, and to be honest it is freaking me out. I know lots of people going through TSW experience this, but it is still scary. I hope this phase doesn’t last long. Thankfully I had very thick hair to start with but it is much much thinner now. The weeping that had been on the sides of my legs seems to be healing as well. It is not as flaky there any more. My face and neck still get very dry, sore, and flaky. I don’t really seem to ever get a break in those spots. But the pain in my neck is much less than it was. At the end of this month I will be entering my 5th month already! Time is sure flying. January could be a tough month for me though because I will have to babysit my parent’s dogs at their house for ten days, plus my two dogs, and I will be by myself. Hopefully the stress of not being in my own home or being with 4 dogs won’t cause me to flare up. I am hopeful that things will continue on an upward swing. I am not sure that I will get on here to post again before Christmas, or even New Years, so to anyone reading this Merry Christmas and a Happy New Year to you!! I hope 2014 bring us all healing and better skin days.